A Written Purpose


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You decide!

So I get a lot of comments saying Damian looks like me, but I’m not convinced… I think there are too many Nate baby pictures where they could be twins (minus Nate’s baldness).  I decided I’d let y’all have a look to see what you think. (Also, who doesn’t love a cute baby picture!)
Nate at about 3 months
Nate at 3 months
Damian at 4 months
4 Months
MH at 6 months
MH at 6 months
Obviously kiddo and I have the same hair (and ears…) but I think he still looks like Nate. 
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Life at home

It’s great to be home again. Things are a bit different around here now.  We’ve got a bit of a  pharmacy/hospital/nursery vibe going on.

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Damian’s on seven different medicines and special formula.  I’ve become a pro at quickly measuring and administering while simultaneously chasing a puppy and wiping tears/vomit.

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While at the hospital I was given Snappies to store my breast milk in and I highly recommend them.  They attach right to the pump or a bottle nipple, can be frozen or heated, make for quick measuring and mixing which is super helpful when you have to fortify with formula.
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This is where all that fortified breast milk goes… His food pump is a “Kangaroo Joey” so it’s affectionately referred to as Joey by us.  Thankfully, Joey has a book bag he fits into so we can take him on the go with us.  I was worried we’d be stuck at home with him having the feeding tube, but thankfully I’m still allowed to venture into the world outside the nursery/office.
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Damian’s doing well, although I can tell he’s getting sick of the tube.  I tell him he just has to make his stomach work and the tube with go “bye-bye.”
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You can see the scar from his surgery.  While it’s very long, it’s also very thin which is good.  Hopefully it continues to heal well and become less noticeable.
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Happy baby boy.

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Ok not always happy.  But he’s still cute…


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Laughter is the best medicine

I need to get some more pictures of my little one with our real camera.  I realize he’s probably going to have this feeding tube in for awhile so I can’t just “wait til he’s pretty again.”  I still think he’s beautiful, even tubed up like he is.

Thankfully the “horn” is no longer in.

If we go home with a feeding tube, we’ll only have one and not two like he has now.
(Notice he’s eyeing his beloved pacifier that momma is keeping from him.)

If we’re going to get through this, we’re going to have to celebrate every achievement, every bit of good news, every joy that Damian brings to our life no matter how small.  Over the last two days, I’ve realized a little toothless smile can overshadow the most daunting challenges and life-altering diagnoses.

Recently, he’s been very happy and smiley, which has been fun.  We’ve read books–he knows all about bath time now (maybe one day we’ll get a real bath in). We’ve played with our balloons–he loves Elmo (he even has Elmo socks). And we’ve tickled and kissed and listened to music.  All kinds of fun things.  However, today was my favorite.  Today we talked.  Ok, so maybe Damian wasn’t really all that intelligible, but I’d say “heeyyyyyyyy” and he’d respond “haaaaaaaa.”  We did that a couple of times, and amazingly enough, my world that had be shattered all of days early suddenly seemed put back together.

So today I decided I refuse to be pitied, especially by myself. Is this going to be hard? Most definitely. The most frustrating thing is not knowing what awaits us. But I’m not losing hope in this unknown because there is one certain thing… Whatever his future may hold, I know that Nate and I will be there, completely changed by a little boy who has shown us we could love more than we ever knew possible.


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Isn’t he cute?

I may be just a bit biased, but I think he’s pretty stinkin’ cute!  I know I promised y’all pictures while we were in the hospital, but the wireless refused to work.  We took a ton though so I’ll be posting more of them soon!  I just wanted to get some initial ones up for everyone to see.

We’re home now, and Damian’s doing well.  Mostly sleeping.  Apparently being born is hard work!  Nate and I are holding up too considering we’re going on very little sleep from the past 3 days.  Surprisingly, our lack of sleep came more from the constant stream of hospital staff rather than a crying baby (and, of course, having him at 11 pm did help either).  Our labor story was nothing like the video (which is probably a good thing) and involved us barely making it in time to the hospital.  I’ll do a separate post about that later though.  For now, enjoy the pictures!

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